Our family became involved with Palliative Care Team in March 2012 shortly before Molly passed away. Despite the fact that Molly had been given a life expectancy of two years at diagnosis, we had never heard of palliative care. At my first meeting with the team I sat down and for the first time ever, was asked, “What did I want for Molly’s life?” I was utterly taken aback at this question as all throughout Molly’s illness; no one had ever asked this. It never occurred to me to even think this way. All I could think about was keeping Molly alive, not necessarily taking into consideration her quality of life or stopping to make sure each day counted. I wish that we had been referred to the team long before March 2012. I believe in my heart of hearts that we gave Molly the very best care and made the best decisions we could for her. But I wish I had known more about “living” while keeping in mind that Molly was likely going to die as a young child. My hope is that all families facing the serious or life limiting illness of a child will have the opportunity to sit down with a palliative care team and think about what they want for their child’s life and how the team can best help them carry out that goal. The Miracles for Molly Dunne Foundation wants to support the Thomas P. Ferry Palliative and Supportive Care Team at Nemours|Alfred I. duPont Hospital for Children and to make that happen for as many children and their families as possible.
~Kristen Dunne, Molly’s mom